Everybody loves their kids, right? They’re all special, important and smart (I’m starting to quote The Help aren’t I)?
into my arms and led us down a path that you’ll hear more about here – Wishing I could switch places.
They said she was, “perfect” that she had “a little murmur” but that all babies do and that it would go away. But 5 days later this is us…
They said I “couldn’t stay.” That this was a critical time meaning , “life or death.” We were told to “go sleep and get some rest”…
I never rested, neither did our family, friends and church. Constant prayers…
At 9 days old she underwent her first surgery, closed heart they called it. An approach through the back. A shunt to help her stay alive until she was big enough, weighed enough, to undergo the major repair necessary to live. We were sent home on a number of meds and orders to keep her from getting sick.
Like mother, like daughter… she ballooned. Failure to thrive, I don’t think so!
Then because she was so “healthy” her heart couldn’t keep up and she started getting sick, again…
And again I worried and feared. And when that didn’t do any good, I prayed until I had no words and I simply said her name to my Father.
After surgery was scheduled and canceled twice due to an unknown blood infection the day finally came. The operation that would take all day. She would be on a bypass machine. They would work to remodel her heart but there was no guarantees…God gave us rest and we slept through the night.
Someone came early am and took her from us. We gave her up and admitted that she wasn’t ours to keep. That was almost unbearable.
It wasn’t easy or without set backs. There where complications. We asked God for more time. We believed and prayed and she started to turn a corner.
We took her home and I’ll admit it, never left her side. I watched her like a hawk, I loved her like it was here and now and forever and always. It was the dream I had those months in the hospital. To have her home and in my arms…
Days passed and milestones much anticipated were reached.
Somehow time passed and she turned “1” – All the support people came and celebrated. At 15 months Lucy has renal valve implants to replace some that aren’t formed correctly. I guess when there is a heart defect it’s common for the kidneys to have an “issue” too…
She is different from the toddler we know. Shy, caring and sensitive. Healthy and imaginative.
Lucy gets a work up and check ups more often than I get my hair done and with each one we see that she is outgrowing the repairs made to her heart when she was a baby. Unfortunately the heart grows and the valves and walls molded out of gore tex mesh does not.
Then the day came, we told her that it was time to remodel her heart again. She knew it already. After an abundance of quiet tears she accepted and submitted and we traveled down the road to recovery together.
This time the Doctors use Bovine material and tell us it should last until her heart reaches adult size, somewhere after puberty. We aren’t thinking about that yet.
Lucy has some rhythm issues and right after she turned 9 she had a tiny EKG implanted in her chest to monitor the beats. We move far from home and she makes new friends and keeps on growing.